{"id":550129,"date":"2026-03-08T12:30:00","date_gmt":"2026-03-08T11:30:00","guid":{"rendered":"https:\/\/medizinonline.com\/?p=550129"},"modified":"2026-03-08T12:55:52","modified_gmt":"2026-03-08T11:55:52","slug":"interim-analyses-of-the-profa-study-show-unmet-needs","status":"publish","type":"post","link":"https:\/\/medizinonline.com\/en\/interim-analyses-of-the-profa-study-show-unmet-needs\/","title":{"rendered":"Interim analyses of the PROFA study show &#8220;Unmet needs&#8221;"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><strong>The PROFA study focuses, among other things, on patient-reported psychosocial effects of Friedreich&#8217;s ataxia (FRDA) at different stages of the disease. The study comprises a cohort of FRDA patients in Germany, France and Austria. Results of recently published interim evaluations provide information on the subjectively perceived multidimensional burden of the disease. Comprehensive care that takes physical and psychosocial aspects into account can help to sustainably improve the situation of patients and their environment.     <\/strong><\/p>\n\n<div class=\"pmpro\"><div class=\"pmpro_card pmpro_content_message\"><div class=\"pmpro_card_content\">Dieser Inhalt ist nur f\u00fcr Benutzer der Gruppe: Medizinische Fachperson zug\u00e4nglich <br \/><a href=\"https:\/\/medizinonline.com\/en\/my-account\/packages\/\">Jetzt beitreten<\/a><\/div><div class=\"pmpro_card_actions pmpro_font-medium\">Already a member? <a href=\"https:\/\/medizinonline.com\/en\/log-in\/?redirect_to=https%3A%2F%2Fmedizinonline.com%2Fen%2Finterim-analyses-of-the-profa-study-show-unmet-needs%2F\">Log in here<\/a><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>The PROFA study focuses, among other things, on patient-reported psychosocial effects of Friedreich&#8217;s ataxia (FRDA) at different stages of the disease. The study comprises a cohort of FRDA patients in&#8230;&hellip;... <\/p>\n<div class=\"pmpro\"><div class=\"pmpro_card pmpro_content_message\"><div class=\"pmpro_card_content\">Dieser Inhalt ist nur f\u00fcr Benutzer der Gruppe: Medizinische Fachperson zug\u00e4nglich <br \/><a href=\"https:\/\/medizinonline.com\/en\/my-account\/packages\/\">Jetzt beitreten<\/a><\/div><div class=\"pmpro_card_actions pmpro_font-medium\">Already a member? <a href=\"https:\/\/medizinonline.com\/en\/log-in\/?redirect_to=https%3A%2F%2Fmedizinonline.com%2Fen%2Finterim-analyses-of-the-profa-study-show-unmet-needs%2F\">Log in here<\/a><\/div><\/div><\/div>","protected":false},"author":7,"featured_media":550133,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"pmpro_default_level":"","cat_1_feature_home_top":false,"cat_2_editor_pick":false,"csco_eyebrow_text":"Friedreich's ataxia  ","footnotes":""},"category":[11548,11508,11396,11363,11503],"tags":[84961,85595,88714,85596],"powerkit_post_featured":[],"class_list":["post-550129","post","type-post","status-publish","format-standard","has-post-thumbnail","category-rx-en","category-education","category-genetics","category-neurology","category-studies","tag-friedreichs-ataxia","tag-omaveloxolone","tag-profa-study","tag-skyclarys","pmpro-level-required","pmpro-level-1","pmpro-no-access"],"acf":[],"publishpress_future_action":{"enabled":false,"date":"2026-06-29 19:25:13","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"wpml_current_locale":"en_US","wpml_translations":{"fr_FR":{"locale":"fr_FR","id":550139,"slug":"les-analyses-interimaires-de-letude-profa-mettent-en-evidence-les-unmet-needs","post_title":"Les analyses int\u00e9rimaires de l'\u00e9tude PROFA mettent en \u00e9vidence les \"Unmet needs\".","href":"https:\/\/medizinonline.com\/fr\/les-analyses-interimaires-de-letude-profa-mettent-en-evidence-les-unmet-needs\/"},"it_IT":{"locale":"it_IT","id":550149,"slug":"le-analisi-intermedie-dello-studio-profa-rivelano-esigenze-non-soddisfatte","post_title":"Le analisi intermedie dello studio PROFA rivelano \"esigenze non soddisfatte\".","href":"https:\/\/medizinonline.com\/it\/le-analisi-intermedie-dello-studio-profa-rivelano-esigenze-non-soddisfatte\/"},"pt_PT":{"locale":"pt_PT","id":550132,"slug":"as-analises-intercalares-do-estudo-profa-revelam-necessidades-nao-satisfeitas","post_title":"As an\u00e1lises intercalares do estudo PROFA revelam \"necessidades n\u00e3o satisfeitas\"","href":"https:\/\/medizinonline.com\/pt-pt\/as-analises-intercalares-do-estudo-profa-revelam-necessidades-nao-satisfeitas\/"},"es_ES":{"locale":"es_ES","id":550199,"slug":"los-analisis-provisionales-del-estudio-profa-revelan-necesidades-insatisfechas","post_title":"Los an\u00e1lisis provisionales del estudio PROFA revelan \"necesidades insatisfechas\"","href":"https:\/\/medizinonline.com\/es\/los-analisis-provisionales-del-estudio-profa-revelan-necesidades-insatisfechas\/"}},"_links":{"self":[{"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/posts\/550129","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/comments?post=550129"}],"version-history":[{"count":2,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/posts\/550129\/revisions"}],"predecessor-version":[{"id":551689,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/posts\/550129\/revisions\/551689"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/media\/550133"}],"wp:attachment":[{"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/media?parent=550129"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/category?post=550129"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/tags?post=550129"},{"taxonomy":"powerkit_post_featured","embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/powerkit_post_featured?post=550129"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}