{"id":569752,"date":"2026-10-06T15:00:00","date_gmt":"2026-10-06T13:00:00","guid":{"rendered":"https:\/\/medizinonline.com\/results-of-the-2025-survey-wave-published\/"},"modified":"2026-10-12T16:51:31","modified_gmt":"2026-10-12T14:51:31","slug":"results-of-the-2025-survey-wave-published","status":"publish","type":"post","link":"https:\/\/medizinonline.com\/en\/results-of-the-2025-survey-wave-published\/","title":{"rendered":"Results of the 2025 Survey Wave Published"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><strong>The survey, conducted under the leadership of EURORDIS\u2014\u201cRare Diseases Europe\u201d\u2014revealed that about two-thirds of people with a rare disease or their family members feel that their mental health is affected. Overall, the large-scale survey revealed a widespread unmet need for psychological support. To address this issue, there are calls for mental health to be given higher priority in the care of rare diseases and in the corresponding health policy framework.  <\/strong><\/p>\n\n<div class=\"pmpro\"><div class=\"pmpro_card pmpro_content_message\"><div class=\"pmpro_card_content\">Dieser Inhalt ist nur f\u00fcr Benutzer der Gruppe: Medizinische Fachperson zug\u00e4nglich <br \/><a href=\"https:\/\/medizinonline.com\/en\/my-account\/packages\/\">Jetzt beitreten<\/a><\/div><div class=\"pmpro_card_actions pmpro_font-medium\">Already a member? <a href=\"https:\/\/medizinonline.com\/en\/log-in\/?redirect_to=https%3A%2F%2Fmedizinonline.com%2Fen%2Fresults-of-the-2025-survey-wave-published%2F\">Log in here<\/a><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>The survey, conducted under the leadership of EURORDIS\u2014\u201cRare Diseases Europe\u201d\u2014revealed that about two-thirds of people with a rare disease or their family members feel that their mental health is affected&#8230;.&hellip;... <\/p>\n<div class=\"pmpro\"><div class=\"pmpro_card pmpro_content_message\"><div class=\"pmpro_card_content\">Dieser Inhalt ist nur f\u00fcr Benutzer der Gruppe: Medizinische Fachperson zug\u00e4nglich <br \/><a href=\"https:\/\/medizinonline.com\/en\/my-account\/packages\/\">Jetzt beitreten<\/a><\/div><div class=\"pmpro_card_actions pmpro_font-medium\">Already a member? <a href=\"https:\/\/medizinonline.com\/en\/log-in\/?redirect_to=https%3A%2F%2Fmedizinonline.com%2Fen%2Fresults-of-the-2025-survey-wave-published%2F\">Log in here<\/a><\/div><\/div><\/div>","protected":false},"author":7,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"pmpro_default_level":"","cat_1_feature_home_top":false,"cat_2_editor_pick":false,"csco_eyebrow_text":"\"Rare Barometer\": International Survey on Rare Diseases","footnotes":"","_members_access_role":[],"_members_access_error":""},"category":[11548,11297,11437,11534,11460,11466],"tags":[102878,102877,102879,102880],"powerkit_post_featured":[],"class_list":["post-569752","post","type-post","status-publish","format-standard","category-rx-en","category-general-internal-medicine","category-pediatrics","category-practice-management","category-prevention-and-health-care","category-psychiatry-and-psychotherapy","tag-eurordis","tag-international-survey","tag-rare-barometer","tag-rare-diseases-europe","pmpro-level-required","pmpro-level-1","pmpro-no-access"],"acf":[],"publishpress_future_action":{"enabled":false,"date":"2026-10-20 01:12:30","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"wpml_current_locale":"en_US","wpml_translations":{"fr_FR":{"locale":"fr_FR","id":569668,"slug":"publication-des-resultats-de-la-vague-denquete-2025","post_title":"Publication des r\u00e9sultats de la vague d'enqu\u00eate 2025","href":"https:\/\/medizinonline.com\/fr\/publication-des-resultats-de-la-vague-denquete-2025\/"},"it_IT":{"locale":"it_IT","id":569674,"slug":"pubblicati-i-risultati-della-tornata-di-rilevazione-del-2025","post_title":"Pubblicati i risultati della tornata di rilevazione del 2025","href":"https:\/\/medizinonline.com\/it\/pubblicati-i-risultati-della-tornata-di-rilevazione-del-2025\/"},"pt_PT":{"locale":"pt_PT","id":569680,"slug":"publicados-os-resultados-da-ronda-de-inqueritos-de-2025","post_title":"Publicados os resultados da ronda de inqu\u00e9ritos de 2025","href":"https:\/\/medizinonline.com\/pt-pt\/publicados-os-resultados-da-ronda-de-inqueritos-de-2025\/"},"es_ES":{"locale":"es_ES","id":569684,"slug":"se-han-publicado-los-resultados-de-la-ronda-de-encuestas-de-2025","post_title":"Se han publicado los resultados de la ronda de encuestas de 2025","href":"https:\/\/medizinonline.com\/es\/se-han-publicado-los-resultados-de-la-ronda-de-encuestas-de-2025\/"}},"_links":{"self":[{"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/posts\/569752","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/comments?post=569752"}],"version-history":[{"count":1,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/posts\/569752\/revisions"}],"predecessor-version":[{"id":569754,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/posts\/569752\/revisions\/569754"}],"wp:attachment":[{"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/media?parent=569752"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/category?post=569752"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/tags?post=569752"},{"taxonomy":"powerkit_post_featured","embeddable":true,"href":"https:\/\/medizinonline.com\/en\/wp-json\/wp\/v2\/powerkit_post_featured?post=569752"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}