{"id":569684,"date":"2026-10-06T15:00:00","date_gmt":"2026-10-06T13:00:00","guid":{"rendered":"https:\/\/medizinonline.com\/se-han-publicado-los-resultados-de-la-ronda-de-encuestas-de-2025\/"},"modified":"2026-10-12T16:49:17","modified_gmt":"2026-10-12T14:49:17","slug":"se-han-publicado-los-resultados-de-la-ronda-de-encuestas-de-2025","status":"publish","type":"post","link":"https:\/\/medizinonline.com\/es\/se-han-publicado-los-resultados-de-la-ronda-de-encuestas-de-2025\/","title":{"rendered":"Se han publicado los resultados de la ronda de encuestas de 2025"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><strong>La encuesta, realizada bajo la direcci\u00f3n de EURORDIS \u2014\u00abRare Diseases Europe\u00bb\u2014, revel\u00f3 que aproximadamente dos tercios de las personas con una enfermedad rara o de sus familiares se sienten afectados en lo que respecta a su salud mental. En conjunto, esta encuesta a gran escala puso de manifiesto una necesidad generalizada y sin cubrir de apoyo psicol\u00f3gico. Para hacer frente a esta situaci\u00f3n, se insta a que se conceda mayor prioridad a la salud mental en la atenci\u00f3n de las enfermedades raras y en el marco normativo correspondiente en materia de pol\u00edtica sanitaria.  <\/strong><\/p>\n\n<div class=\"pmpro\"><div class=\"pmpro_card pmpro_content_message\"><div class=\"pmpro_card_content\">Dieser Inhalt ist nur f\u00fcr Benutzer der Gruppe: Medizinische Fachperson zug\u00e4nglich <br \/><a href=\"https:\/\/medizinonline.com\/es\/mi-cuenta\/paquetes\/\">Jetzt beitreten<\/a><\/div><div class=\"pmpro_card_actions pmpro_font-medium\">\u00bfYa eres miembro? <a href=\"https:\/\/medizinonline.com\/es\/conectarse\/?redirect_to=https%3A%2F%2Fmedizinonline.com%2Fes%2Fse-han-publicado-los-resultados-de-la-ronda-de-encuestas-de-2025%2F\">Accede aqu\u00ed<\/a><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>La encuesta, realizada bajo la direcci\u00f3n de EURORDIS \u2014\u00abRare Diseases Europe\u00bb\u2014, revel\u00f3 que aproximadamente dos tercios de las personas con una enfermedad rara o de sus familiares se sienten afectados&#8230;&hellip;... <\/p>\n<div class=\"pmpro\"><div class=\"pmpro_card pmpro_content_message\"><div class=\"pmpro_card_content\">Dieser Inhalt ist nur f\u00fcr Benutzer der Gruppe: Medizinische Fachperson zug\u00e4nglich <br \/><a href=\"https:\/\/medizinonline.com\/es\/mi-cuenta\/paquetes\/\">Jetzt beitreten<\/a><\/div><div class=\"pmpro_card_actions pmpro_font-medium\">\u00bfYa eres miembro? <a href=\"https:\/\/medizinonline.com\/es\/conectarse\/?redirect_to=https%3A%2F%2Fmedizinonline.com%2Fes%2Fse-han-publicado-los-resultados-de-la-ronda-de-encuestas-de-2025%2F\">Accede aqu\u00ed<\/a><\/div><\/div><\/div>","protected":false},"author":7,"featured_media":569686,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"pmpro_default_level":"","cat_1_feature_home_top":false,"cat_2_editor_pick":false,"csco_eyebrow_text":"\u00abRare Barometer\u00bb: encuesta internacional sobre enfermedades raras","footnotes":"","_members_access_role":[],"_members_access_error":""},"category":[11552,11509,11288,11402,11430,11435],"tags":[102749,102747,102748,102750],"powerkit_post_featured":[],"class_list":["post-569684","post","type-post","status-publish","format-standard","has-post-thumbnail","category-rx-es","category-gestion-de-la-practica","category-medicina-interna-general","category-pediatria","category-prevencion-y-asistencia-sanitaria","category-psiquiatria-y-psicoterapia","tag-barometro-de-las-enfermedades-raras","tag-encuesta-internacional","tag-eurordis","tag-rare-diseases-europe","pmpro-level-required","pmpro-level-1","pmpro-no-access"],"acf":[],"publishpress_future_action":{"enabled":false,"date":"2026-10-20 02:24:23","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"wpml_current_locale":"es_ES","wpml_translations":[],"_links":{"self":[{"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/posts\/569684","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/comments?post=569684"}],"version-history":[{"count":1,"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/posts\/569684\/revisions"}],"predecessor-version":[{"id":569687,"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/posts\/569684\/revisions\/569687"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/media\/569686"}],"wp:attachment":[{"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/media?parent=569684"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/category?post=569684"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/tags?post=569684"},{"taxonomy":"powerkit_post_featured","embeddable":true,"href":"https:\/\/medizinonline.com\/es\/wp-json\/wp\/v2\/powerkit_post_featured?post=569684"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}