This content is machine translated National Concept Rare Diseases Breathing life into a concept The “National Concept for Rare Diseases” from the FOPH has been available since September 2014. This is a milestone in view of the great challenges and everyday situations of those…
View Post 2 min This content is machine translated New interdisciplinary consultation hour at UKBB Interdisciplinary against complex diseases Parents of children with a complex medical condition face significant challenges in their daily lives. The relief is all the greater when they do not have to attend many individual…
View Post 3 min This content is machine translated Amyloidoses Heart complaints can give first indication In the field of rare diseases, there is an enormous need to catch up in terms of knowledge, correct diagnosis and therapy. Many primary care physicians are also feeling this…
View Post 2 min This content is machine translated 4th Swiss Rare Disease Day The goal is a national strategy for rare diseases The 4th Swiss Rare Disease Day took place on Saturday, March 1, 2014, at the Inselspital Bern. The focus was on the numerous administrative, legal and medical problems that patients…
