Results of the 2025 Survey Wave Published

The survey, conducted under the leadership of EURORDIS—“Rare Diseases Europe”—revealed that about two-thirds of people with a rare disease or their family members feel that their mental health is affected. Overall, the large-scale survey revealed a widespread unmet need for psychological support. To address this issue, there are calls for mental health to be given higher priority in the care of rare diseases and in the corresponding health policy framework.